Useful links

Centre in London for people with neuromuscular conditions offering healthcare services, training and research.

Centre in Cheshire for people with neuromuscular conditions offering support and advice, training, physiotherapy and complementary therapy.

Centre and charity in Coventry for people with neuromuscular conditions offering specialised physical therapies and support.

Charity providing support to people with Duchenne Muscular Dystrophy.

Charity providing support to people with Charcot-Marie-Tooth Disease

A user-led organisation that promotes choice, control and quality of life for teenagers and adults with Duchenne Muscular Dystrophy in the UK.

Advice and support for people living with Spinal Muscular Atrophy.

Charity that provides both practical and emotional support across all GSD’s and their variants.

Charity that provides information and advice about neuromuscular conditions.

National network that is part of Muscular Dystrophy UK and campaigns for change and provide guidance for young disabled people.

Charity providing support to people with Dermatomyositis, Polymyositis, Inclusion Body Myositis and Juvenile Dermatomyositis.

Charity that supports people with mitochondrial disease, raises awareness and funds research into prevention, diagnosis and treatment.

A non-profit organisation that provides information, support, links to patient’s Facebook groups and research.

Charity that provides some basic info on Kennedy’s Disease, but remains the best source for information on Motor Neuron Disease in general.

Charity providing information and support for people with Myotonic Dystrophy.