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  • Home
  • Patient Stories
  • Family stories
  • Patient Advice
  • Family Advice
  • Professional advice
  • Useful links

Family advice

Family advice topics

  • Topic 1: Knowing how much to help
  • Topic 2: Being patient – understanding the person
  • Topic 3: Being more of a family member than a carer
  • Topic 4: Dealing with difficult emotions and negativity

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Patient advice

Read and listen to handy hints from different people with neuromuscular conditions on how to cope with changing abilities, maintaining independence, and adjustment of a life plan.
read patient advice

Professional advice

Doctors, nurses, therapists, and orthotists from the National Hospital for Neurology & Neurosurgery (UCLH) answer questions that they frequently get asked by people who live with neuromuscular conditions. Read or watch videos about handy hints from professionals in neurorehabilitation.
read professional advice

Useful links

Browse useful links, that can provide practical support for those living with neuromuscular conditions, both patients and carers – from information about financial support to organisations that promote well-being.
read useful links
  • Home
  • Patient Stories
  • Family stories
  • Patient Advice
  • Family Advice
  • Professional advice
  • Useful links
  • Home
  • Patient Stories
  • Family stories
  • Patient Advice
  • Family Advice
  • Professional advice
  • Useful links
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